Wednesday, February 12, 2014




A Picture Worth a Thousand Words


“I found I could say things with color and shapes that I couldn't say any other way--things I had no words for.” 
-Georgia O'Keeffe


She sits silently at the table and watches me without expression as I lay out the contents of my plastic bin across from her. I unroll the large cotton canvas onto the table, place paintbrushes at each seating and open the tempura paints. I don’t say a word. I pick up each paint bottle one at a time and hold it up for a better view. I appear as if I’m trying to decide which color to use first, but that isn’t the case. I’m watching her, waiting for a brief change in her facial expression that signals I am holding the most perfect color to paint with. That color is pink.

I open the paint and begin pouring it onto the canvas, making large dramatic circles with each color. Joyce’s eyes follow my every movement but her face remains expressionless. I put the paintbrush in Joyce’s hand. I pick up my paintbrush and drag it through the paint, hoping that she will follow my lead. She slowly starts moving the paint around with her brush. After a moment she puts the brush down and uses her hands to paint the canvas.  Suddenly, something remarkable happens, Joyce begins to speak.

Joyce starts telling the other residents, “It’s not messy” and asks them if they are “enjoying it.” Joyce’s daughter and granddaughter are visiting with her and appear shocked. Her daughter explains to me that, due to Alzheimer’s disease, Joyce hardly speaks anymore and when she does it often doesn’t make sense. She also tells me that Joyce used to be a grade school teacher. I realized that in that moment, while painting with her hands, Joyce was taken back to a time that felt very familiar and safe to her.

Communication is a basic human need. It’s how we express emotions, feelings, thoughts, ideas and it’s how we connect to another person.  However, for many people with Alzheimer’s and other related dementia, communication can be challenging. As the disease progresses the parts of the brain that control language, reasoning and thoughts become damaged. This can make speaking and understanding speech incredibly difficult for our memory care residents.

Art therapy, simply put, stimulates the brain. It can trigger memories, improve communication and produce a positive social experience. As caregivers, we must realize that self-expression doesn’t always need to be communicated verbally. It is important we provide an alternative means by which our residents can express themselves. Art therapy offers a way for Dementia and Alzheimer’s residents to express themselves when words fail them.

Thursday, April 5, 2012

5K Fun... again!

Okay family and Friends!!!! It's that time of year again! We are trying to raise money for pacemaker camp. You all remember what and incredible time Skyler had last year, how many activities she was able to do without worrying about her heart, and how happy she was to meet so many other kids with pacemakers! Please consider making a donation ....and leave a message! Tell them Skyler Bragg sent you! Thank you :)

https://howtohelp.childrenshospital.org/events/pfp/?ProfileID=JL0027&name=keepingthebeat



Tuesday, December 20, 2011

Merry Christmas!

I cannot believe Christmas is this weekend! The year just flew by for me and I must say that 2011 was probably one of my best years ever. Skyler's pacemaker issues have been resolved, I finished school, got a few jobs and finally settled in at Chestnut Park as the memory care program director. 2011 was pretty sweet.

I doubt I'll be posting as much in the future. I just wanted to wish you a Merry Christmas and a Happy New Year! :)

Monday, October 10, 2011

Pacemaker Camp




Pacemaker Camp 2011






I am happy to report that Skyler had a fabulous time at Pacemaker Camp! She met lots of new friends and learned so much about herself. I'm so grateful she had this amazing opportunity.







Her favorite part was climbing the rock wall. I still can't believe she climbed that high!

There was a duck theme going on. Ducks galore were given to the kids.


The best part about all of this was hearing Skyler talk about how the other kids had pacemakers and scars too. She had a weekend away with kids just like her and she enjoyed every minute of it.


Sky is the blond on the left wearing black pants


So now we have to start thinking about next years camp. That means I need to step up my running routine. I need to beat last years time! Stay tuned, more information regarding the Keeping the Beat 2012 5K will follow soon!






Thursday, August 18, 2011

Electrifying

Of course my daughter, Skyler, would be the child to get shocked while removing a plug from an outlet. Yup, the shock traveled right up her arm and into her pacemaker. I mean really, is anyone surprised? I am not. I emailed her doctors and asked if I should be concerned. They really don't think any harm was done but would like her to have an ekg just to be sure. I'll bring her in next week for that. The child kills me slowly each day!
On to more cheerful news... Skyler is now a karate kid. We just signed her up for karate this week and she loves it. She has been practicing her moves every night and has requested we purchase her a rubber knife and punching/sparring gloves. Rick has looked into purchasing a jock cup. (Is that what they're called?) Elizabeth is thinking about starting karate but she's not sure. She definitely wants signing lessons so I'll sign her up for those next week. Kayla is happy these days. We got her a car. She is never home now.... ha!
My jobs are going well. I still can't believe I am a nurse. All those years of hard work have finally paid off. I'm settling into my nursing career and trying to balance my family life.... and failing miserably. Things will be better once the kids are in school. Right now they are home all day and I have to leave them to either go to work or to sleep (I often work the overnight shift). Once they are in school I can sleep when they are in school and spend time with them when they come home. It will all work out!
That's really all there is to report. Life is good, hectic, but good.

Wednesday, July 20, 2011

Magnificent!

This had truly been an amazing month for me. My life is starting to come together and it's a magnificent feeling! To start, I passed the state boards and received my nursing license. So many years of hard work, aggravation, guilt, happiness and persistence finally paid off. I'm thankful to everyone that got me to where I am... they know who they are. Thank you so much.
My next bit of good news concerns Skyler. Sky had a cardiology check-up yesterday and, for the first time since November 2010, everything was within normal limits. Her heart function and size were all normal! This is so awesome! We are back on track again, such a nice feeling.
Last but not least..... I got a job today!! Actually I got two jobs today! The first job is with Milton Health Care. I will be working on a sub-acute floor and will learn so much! I can also pick up shifts on the other floors if I wish. There is an Alzheimer's unit, a behavioral unit and long term care. I was offered the job today and as soon as I got home I received a call from Benchmark Assisted Living (where I work as a CNA) asking me if I could work as a nurse this weekend. It was also decided that I will work Per Diem there as well. Two jobs! I can't even believe all this happening. I swear I am going to wake up from a dream. This has been the best month of my life!





Sunday, July 3, 2011

Good news!

A more detailed blog will follow but I just had to share that I passed my state exam! I am officially a Registered Nurse!

Saturday, June 25, 2011

Cabin Fever

I usually enjoy rainy days. That sleepy feeling of wanting to do nothing but watch movies, eat junk food and relax on the couch all day, it's a good feeling.

Usually.

I've been stuck inside the New Hampshire chalet for 3 days straight due to rain, cold, and one stubborn Sun. I came up with my friend so we could study for the big state exam on the beach, basking in the Sunshine. Instead we have been forced to study inside all day. It's quite depressing.

Cabin Fever is setting in.

Videos coming soon.

Goodnight and sweet dreams. ;)

Sunday, June 19, 2011

Happy Father's Day!

This says it all.

A video Sky and I made for Rick.


I'm having trouble uploading it to this site so just follow the link I provided above. Enjoy!





Saturday, June 18, 2011

Transvenous approach for epicardial pacing: A Mom's Idea?



Well, that didn't last long. Sky is running around and I can't keep her still. She's also eating everything in sight! I feel like all I do is tell her to stop jumping and make her food. It's never ending. It just amazes me that she had surgery 9 days ago, a 7 hour surgery to boot.

I don't think I explained what happened during her surgery and why we have to be careful about moving her left arm. During the surgery the Doctor had trouble getting her lead into the proper position because Sky's veins are too small. It's difficult to explain without showing you a picture but the vein (coronary sinus) that runs along the hearts muscle was the problematic area. The lead had to go in a certain amount in order to sit properly, and if I understand correctly, exert a certain amount of pressure on a part of the lead that activates the coiled tip. The coiled tip is what keeps it in place. If the lead slips out of position even a little bit the part that keeps the coil, well, coiled, will fail and the lead will straighten and fall completely out of place. I probably didn't explain that very well, sorry. Anyway, the doctor is worried that since he couldn't get that lead in all the way that it will move and Sky will need yet another huge surgery.

I came up with this great idea while talking about the surgery with the doctor. I'm writing it here in hopes that someone will steal the idea and make it happen. The doctor was explaining the pros/cons of the transvenous approach as well as the thoracotomy epicardial approach. The transvenous is less invasive, faster, and easier but not always successful in kids with smaller veins. A small incision is made in the left chest and leads are run down into the heart and attached to the pacemaker, which is placed in the upper left chest wall. The epicardial approach is very invasive. A large transverse incision is made along the rib cage, the lung is deflated, and the leads are placed on the outside of the heart. This approach works best for kids.

Ok, so now that you kinda have an idea of the 2 different approaches...... I suggest a third approach, a hybrid method if you will. I suggest making an incision in the upper chest wall, dropping two leads down into the heart (right atrium and right ventricle). The ventricular lead is the issue. It cannot be placed into the heart (deadly). It must be placed either in the coronary sinus or on the myocardium itself. My hybrid method for the LV lead is a transvenous approach for epicardial pacing. Drop the lead down the vein just like the explained transvenous approach but once you get close to the heart "pop" the lead out of the vein and place the coiled tip directly onto the heart. This could be done (in my mind at least) by inserting a chest tube to deflating the left lung, gently go thru the heart covering and inserting a small instrument (laparoscopy) that could manipulate the lead into place. It is still invasive BUT it is no way as brutal as thoracotomy.... Especially if it's your 3rd thoracotomy! I asked sky's electrophysiologist why this approach isn't used. He paused and told me they don't have the instruments to do it. I told him to get on it and make it happen. So could someone out there make this happen please? You can take most of the credit, just let me be on the research team. Thank you :)

Side note: I'm not suggesting I am the first person to think of this. I have not been able to find any literature on the idea. If you are reading this and thought of it before me, yay for you... make it happen please.