Thursday, December 9, 2010

Good to be home

We are home :)

Sky is doing so well! I just can't believe she is up playing considering all she's been through.
I really am in no mood to blog, to be quite honest, but I wanted to just give a quick explanation regarding the whole lead situation.

Sky had surgery to replace her pacemaker and her non functioning left ventricular lead. After the pacer was placed and the surgeon was testing each lead he realized the right ventricular lead was not pacing. Turns out the lead had detached from the R. ventricular wall and migrated to the right atrium. HOWEVER, a DR didn't read her Pre-op xrays correctly and it went unnoticed. We are only human, things go unnoticed all the time, and in the end, no harm was done.
So after surgery they told me the whole lead situation and I was not happy. There was talk about another surgery to replace the migrated lead. One doc hinted around to it, another said no, then another said probably.... it was just a confusing mess. They decided to do another echo the day after surgery and go from there. That echo was awesome. Her EF was up to 70 percent! (That's really good in heart language)
Then today we had to have the pacemaker checked again. I don't know the name of the machine but it's just a computer with a wand attached to it. The wand is placed on skys belly (her pacemaker) and the computer reads what the leads are "doing". This time we learned that the right atrial lead isn't working correctly.
So what does all this mean for Skyler? Good question. It doesn't mean a darn thing. As Sky doesn't require atrial pacing (she is only paced 2 percent of the time on the right) they reprogrammed the device to allow her PM to sense her atrial rate and pace her ventricle. Basically, it should not have any neg effects. They will, of course, keep a close eye on it. As far as the migrated lead, I have been assured that it cannot do any harm.

That is the story of the leads. Think it's confusing? It is, trust me.



Thank you all for thinking about us! I'll be sure to post about Sky's recovery soon.

I'm not sure if this link will work, but here are some pictures of our adventure at Children's Hospital.

1 comment:

Anonymous said...

So glad you are all home and sounds like all is ok. You did an excellent job (as always) of explaining things. If I remember correctly, at one point her EF was down in the low teens - amazing to hear that it is now 70%!

Love to you all,
Amy